CRPS, or Complex Regional Pain Syndrome (Type 1), is a change in the nervous system that's usually triggered by a very painful episode. The bad kinds affect the brain, nerves, muscles, skin, metabolism, circulation, and fight-or-flight response. Lucky me; that's what I've got. ... But life is still inherently good (or I don't know when to quit; either way) and, good or not, life still goes on.

Sunday, June 6, 2010

Lovely note to start on

Pisses me off that almost all the studies done on CRPS insist on recruiting subjects (that is, patients) who have only one affected limb!  This specifically precludes a huge proportion of us. Unrealistic & stupid.

Happily (and never was the word less apt), RSDS.org is doing a 20-year study on the natural history of CRPS.  With luck, that might change the general focus to something more realistic. It only takes practice about, oh, 10-15 years to catch up with the data.

Frkn one-affected-limb-only.  Sheesh.  Bloody amateurs.

If I had a massive gift to endow, I'd create scholarships for people with CRPS to get all the support & equipment they need to complete medical school, medically-related advanced degrees, whatever it takes.
at 7:35 PM
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